Wednesday, October 10, 2012

Lyme to me

So I've been trying to get an idea as to whether or not I have Lyme or if I'm dealing with anothe viral infection that's mirroring Lyme and it's driving me crazy. Because now I've discovered that I can give Lyme to my baby through breast feeding and that's pretty darn serious. Needless to say the drama continues.

See these past ten days I've continued to have a lot of weird things. This time, however, I got different symptoms which include: tooth pains; severe neck, shoulder and back pains; some slight light headedness if I tilt my head; and a new rash on my foot.  I'm continuing to stay on the paleo diet though it doesn't seem to be doing anything to improve my symptoms. I still get headaches and while I have cheated on occasion it hasn't really made that much of a difference from when I've been off it from when I've been on it. I do notice that I get abdominal pains after I eat glutenous foods, so I'm trying to avoid those at all costs, but as a substitute I've been eating corn chips and potato chips from time to time just to save me from a crash moment. But going back to the neck aches, it seems to be going further up my neck almost into my skull. When I move my head sharply it feels like a sharp pain going right up my head. I called my chiro to ask what they thought it could be and they said a pinched nerve, and I hope he is right.

The strange thing is that I went to my chiro just last week and had a decent session, but I didn't feel like I was adjusted fully since, when I went home, my shoulder hurt as much as it did before I left. He was focusing mostly on my gallbladder and though that's fine and good, I wish he massaged my shoulder more. Anyway, I need to go to another chiro that's closer so I don't have to drive 30 minutes all the time to get realigned. As an aside, BCBS of PA is now limiting my chiro visits to only 8 a year down from 12 and anything over 8 they need to receive an explanation from my doctor that tells them why I need to continue getting adjusted and if they don't feel it's necessary, then I have to pay $40 per visit. It's outrageous what's happening to health care. They're trying so hard to cut back spending and yet they're going after one of the few areas of modern medicine that's helping restore people's health and not merely giving people bandaids or drugs to help them think they're better. Absolute insanity. Don't get me wrong, I believe medicine has its place, but I think more people would be better served to have their bodies detoxified and be given things (i.e. supplements) and foods that would naturally restore their health. 

Anyhow, one thing I've noticed is that I always have a tough time keeping my adjustment. When I was seeing the NUCCA doc, I would constantly lose my adjustment , and I mean a day or two from being seen. which I couldn't understand since I wan't doing anything strenuous. When I'd ask him why it was happening, he just said it was my body and there was no way of knowing for sure. Great.  All I can say is that right now I am in a lot more pain in my back and neck than I've been in over a year and don't know why. Is it Lyme related or simply due to being out of alignment? Big question mark right now and I wish I had more answers since arthritic pain in the neck and shoulders is a huge red flag for people who have early stages of Lyme. 

And this brings me back to what I said earlier. Do I or don't I continue breastfeeding? I've read horrible testimonies about mom's who've done this and have felt terrible all their lives because of it. I do not want to be one of those people. I did talk to my kids pediatrician and asked him to have my kids tested and thank God they all came back negative, however, is that reliable or not? How does anyone know for sure if they have it? AHH!

The blood tests are so hard to trust and that makes the whole situation so hard to judge! With my having a positive on the ELISA, I read that it is possible to get a false positive if:


  • The antibodies to the infectious organism triggering the antibodies are not the Lyme spirochetes. Other organisms that can trigger such antibodies include syphilis and relapsing fever. Dental infections may trigger a false positive response.
  • The patient may have been infected with Lyme disease previously and harbor antibodies to the disease."                                                                                                                  Taken from here


  • So what I don't understand is if I've had Lyme before how can I not have it now since I was never treated for it? And if I don't have Lyme, then I might have one of the other mentioned issues which I'm pretty sure I don't have so does that mean since I don't have any of those issues that I do have Lyme? Who knows!?

    I got the script for a ton of blood work from the one traditional doc in Hermitage that I was going to go to, (changed it since the earliest I could see him was in December so I switched it to this other Indian doc aforementioned) and had all the testing done. Those results were looked at today by another local homeopathic doc who said that I do not have Lyme since my West. Blot was negative. However it came to my attention that this Hermitage doctor doesn't test for Lyme using the ELISA so, again, I don't know what to think. The girl on the phone told me that my thyroid was low and should have that treated. That I'll likely go to a new PCP for. I'm ditching the last lady.  

    Oh and before I forget, I want to take a moment to promote a documentary I recently discovered that exposes the controversy surrounding Lyme disease. It is very eye opening and I encourage everyone to watch it. You can find it on Netflix watch it now. The trailer is below.



     Well, I am getting sleepy so I need to sign off. I hope to have some answers to all of this soon. It will be good to finally be seen come the end of the month. I just want to someone to give me an explanation for all these maddening health mysterious. It's enough to drive one to drink, which I would if only I knew it wouldn't cause me to get worse ;) Tata for now. Ciao!

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